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REMEDY : BNSSG referral pathways & Joint Formulary

Long COVID (after 12 weeks)

Checked: 25-06-2021 by Rob.Adams Next Review: not set yet

Overview

NICE guidelines suggest that patient with COVID infection should be divided into 3 groups or stages.

  • Acute COVID-19: signs and symptoms of COVID-19 for up to 4 weeks. See Acute Assessment page.
  • Ongoing symptomatic COVID-19: signs and symptoms of COVID-19 from 4 to 12 weeks. See the Long COVID (4-12 weeks) page.
  • Post-COVID-19 syndrome: signs and symptoms that develop during or after an infection consistent with COVID-19, continue for more than 12 weeks and are not explained by an alternative diagnosis (this page).

Stages 2 and 3 are also otherwise known as Long COVID.

This section will deal with the management of patients with Post COVID-19 Syndrome which is defined as signs and symptoms of COVID-19 that persist for more than 12 weeks following infection.

Long COVID in children

Please see the Long COVID in children page.

Health inequalities in Long COVID

It is recognised both locally and nationally that there are siginficant health inequalities in COVID -19. Clinicians should be mindful that some patient groups may need more help in accessing Long COVID  services and support.

Primary Care Assessment

Patients with persistent symptoms after 12 weeks are less likely to have an acute deterioration related to COVID- 19 infection.

It is still important to be vigilant and look for other causes of symptoms that may or may not be related to COVID-19. Do not assume that ongoing symptoms are all due to COVID-19 and keep an open mind about other diagnoses. 

Consider the following investigations in patients who continue to have symptoms:

Blood tests to include:

  • FBC, TSH, HbA1c, U&E, LFT, CRP, TTG antibodies, Calcium, creatinine kinase (these tests are mandatory prior to referral to Long COVID clinic and are also listed on the CFS profile on ICE)

Also consider if symptoms indicate:

  • Pulse oximetry - at rest. Also consider sit/stand or 40 step test to check for desaturation.
  • Chest Xray - if there are persisting respiratory symptoms.
  • D-dimer - only if acute pulmonary emobolism is suspected. (blanket testing of all patients is not advised).
  • Spirometry or relaxed FVC  (FVC < 80% predicted indicative of restriction).
  • ECG - if there are cardiac symptoms or in patients who remain breathless.
  • NT-proBNP - in patients with suspected heart failure and who are eligible - see NT-proBNP page.
  • Echocardiogram - if NT-proBNP is raised*.
  • (*If BNP slightly raised and normal ECHO then investigate for respiratory causes (mild elevation in BNP is non-specific and can be elevated for all sorts of reasons e.g. renal impairment etc)

You may also wish to refer to the NICE guidelines:

 3 Investigations and referral | COVID-19 rapid guideline: managing the long-term effects of COVID-19 | Guidance | NICE

 

Your COVID Recovery

At this stage all patients should be directed to the Your Covid Recovery website produced by the NHS if this has not already been advised.

The site has advice for patients on self care and managing expectations during recovery.. here is lots of useful support for patients who have had either a severe or mild COVID illness. It is divided into sections for patients depending on their ongoing symptoms:

Effects on your body:

  • Breathlessness
  • Fatigue
  • Cough
  • Managing your oxygen
  • Taste and smell
  • Voice and swallowing
  • Musculoskeletal
  • Chest pain
  • Palpitations
  • Headache
  • Skin disorders

Effects on your mind: 

  • Managing fear and anxiety
  • Managing your mood and coping with frustration
  • Memory and concentration

There is also advice about pacing and returning to work after COVID-19 and when further advice shoud be sought.

Paper versions of Your COVID Recovery and translation into different languages are currently being worked on nationally.

Long COVID Clinic

The Community Long COVID SPA run by Sirona is a therapy service for patients with symptoms of Long Covid that persist for 12 weeks or more following infection, which are significantly impacting their ability to function in day to day life and who have not responded to initial self-care measures (see above).

Patients with specific physical symptoms should be investigated appropriately in primary care and referred to secondary care clinics if required.

It is particularly important that patients who are vulnerable or who can't access self -care resources are referred to this service.

The Long COVID SPA service may include,

  • a baseline assessment of Long COVID symptoms,
  • virtual or face to face clinic based assessment of needs,
  • support with accessing the “Your Covid Recovery” platform and goal setting using shared decision making,
  • referral or signposting to specialist services or sources of support,
  • liaison with specialist MDT for more complex cases

Referral criteria for the Long COVID SPA (please be aware that these criteria may change 

  • Patients with Long Covid symptoms who are still struggling to function after 12 weeks where signposting to self-management has not led to improvement (see Your Covid Recovery above).
  • Patients should be appropriately assessed to exclude any underlying pathology before referral (see investigations listed in primary care assessment section above).
  • At present, they are only able to accept referrals from GPs

Please complete the referral form and send to: Sirona.longcovidreferrals@nhs.net . This form should now also be available via a Long COVID protocol / template on Emis systems across BNSSG.

Management of specific Long COVID symptoms

Fatigue

Fatigue following COVID infections is quite common but most patients will make a full recovery. The Your Covid Recovery website has some advice for patients on managing this symptom.

There is also some guidance for patients on 'Post viral fatigue - a guide to management' available from the British Association of CFS/ME which may be helpful.

If symptoms such as fatigue or cognitive dysfunction persist for more than 12 weeks then referral should be considered, particularly if the patient is not making acceptable progress despite following the self-management and rehabilitation advice above. These patients should be referred initially to the Community Long COVID clinic rather than the CFS/ME service.

Anxiety and Depression

Some patients who have had COVID-19 may suffer from psychological issues as a result of their illness. The Your Covid Recovery website has some advice for patients.

Several resources are available to patients and further information is available on the Mental Health Support for patients page.

Patients can also be referred to self refer to IAPT services (Vita).

Respiratory Symptoms

See the Long COVID (4-12 week) page for advice about management of persistent respiratory symptoms following COVID-19.

Respiratory symptoms (cough and SOB) will generally improve quickly after mild COVID-19 infections but some patients who are more severely affected may be more at risk of longer term respiratory problems - particularly if they have had COVID pneumonia or other complications such as PE.

Patients who have been hospitalised may automatically be followed up by respiratory teams.

The Your Covid Recovery website also has some advice for patients on symptoms such as breathlessness and cough. 

Anosmia

Change in sense of smell or taste is a symptom of acute COVID-19 and in most cases this symptom will recover within 3 weeks. In some patients anosmia may persist.

The Your Covid Recovery website has some advice for patients.

Please see the Anosmia page for advice on management and when to consider referral to ENT for this symptom.

Joint and Muscle pain

Some patients will experience persisting joint and muscle pain or stiffness - particularly if they have been hospitalised. The Your Covid Recovery website has some advice for patients.

Patients should be encouraged to gradually increase physical activity and/or exercise balanced with rest but if problems persist then a physiotherapy referral should be considered.

If there is persisting joint swelling for more than 4 weeks then consider a diagnosis of early inflammatory arthritis, and referral to EIA clinic if criteria are met.

Returning to work

The Faculty of Occupational Medicine has published advice for health care professionals and employers  to help them facilitate the return to work of people who have long-COVID: :

Guidance for healthcare professionals on return to work for people with long-COVID 

Guidance for managers and employers on facilitating return to work of employees with long-COVID

The guidance works on the principle that work is generally good for health and gives practical steps that health care professionals can use when making decisions about fitness to return, including certification.